The PSP (Progressive Supranuclear Palsay) charity fundraiser held in Barvas last Friday raised a staggering £5,185
Ian “Sgadan” Macleod, originally from Bragar but now living in Cumbernauld was originally diagnosed with Parkinsons, which is similar, in 2007 and in 2013 it was confirmed as PSP.It is a neurodegenerative disease causing the premature loss of nerve cells in certain parts of the brain.Over time this leads to difficulties with balance, movement, vision, speech and swallowing. PSP is a very individual condition and symptoms can be experienced with varying degrees of severity and at different stages of progression and research suggests that there are over 4000 sufferers in the UK.
Local duo Derek “Pluto” Murray(Ness) and Ali “Ban” MacLennan(Shawbost), who are long term friends of Sgadan, took on the fundraising challenge just over ten weeks ago for him as it was his wish to raise awareness of the condition and at the same time raise some funds for the organisation. The event, held in Barvas Community Hall, included bingo, wheel of fortune and an auction with the evening rounded off with a ceilidh which included performers New Tradition and the Ness Melodeon Band.
Derek “Pluto” commented: “There are so many people to thank and we are organising for this to be done personally over the coming weeks, we are just speechless at the generosity shown by everyone and the evening will remain in our minds forever.”
Co organiser Ali “Ban” went on to say: “Even after the event we are still getting people asking if they can donate so for this reason we are keeping our Just Giving page open until the end of the year.”
Anyone wishing to donate can do so: here